Landmark Proposal on Accessible Air Travel Announced

Greetings, here’s your MDA Newsletter [Muscular Dystrophy Association]( [MDA Monthly Newsletter] Muscular Dystrophy Association Applauds Landmark Proposal on Accessible Air Travel at The White House [Muscular Dystrophy Association Applauds Landmark Proposal on Accessible Air Travel at The White House ]( Last week marked a historic moment for the disability community as the Muscular Dystrophy Association (MDA) stood witness to a [groundbreaking proposal]( by the Biden Administration and the United States Department of Transportation (U.S. DOT), reinforcing the safety, rights, and dignity of air travelers with disabilities. This [pivotal announcement]( featuring remarks by esteemed leaders including Secretary of Transportation Pete Buttigieg, Senator Tammy Duckworth, and U.S. DOT Disability Advisor, Kelly Buckland, signals a profound commitment to inclusivity and progress. [Read the Proposal]( Join MDA’s Public Policy and Advocacy team on March 14 for the MDA Advocacy Institute: The Administration’s Major Air Travel Proposal Following the monumental announcement by the U.S. Department of Transportation, we invite you to join this event aimed at providing insights into the implications of the proposed rule as we eagerly await its finalization. Stay informed and engaged with us as we collectively navigate towards a more accessible and inclusive world. Your voice matters, and your participation is vital in shaping a future of equal access and opportunity. [Register Today]( --------------------------------------------------------------- Heart of the Muscular Dystrophy Association Mission Was in Focus at the 2024 MDA Clinical & Scientific Conference Opening Day [A recap of the 2024 MDA Clinical & Scientific Conference]( Thousands of researchers, clinicians, affiliated healthcare providers, industry professionals, and patients from around the world gathered in Orlando, Florida, for the largest annual global gathering of the neuromuscular disease community at the [2024 MDA Clinical & Scientific Conference](. [Read the Day One Recap]( --------------------------------------------------------------- Students: Apply Now for MDA’s Inaugural College Scholarship Program [Students: Apply Now for MDA’s Inaugural College Scholarship Program ]( MDA is excited to launch a new scholarship program to support young adults in the neuromuscular community. The program will include financial scholarships, resources, and supplemental support to aid students’ success. [Learn More]( Neuromuscular disease journeys don't need to be navigated alone — we're here to help! [VIsit the MDA Resource Center]( New! Access to Gene Therapy Workshop [New! Access to Gene Therapy Workshop]( Curious about gene therapy? This on-demand workshop provides information on a variety of gene therapy treatments, explains the FDA drug approval process, addresses coverage options, and presents common considerations before, during, and after treatment. [Take the Workshop Today!]( --------------------------------------------------------------- Summer is Coming! Apply for Camp Today! [Summer is Coming! Apply for Camp Today!]( At MDA Summer Camp, kids living with neuromuscular disease enjoy a week of fun, freedom, and friendship, creating cherished memories in a supportive environment. Summer is approaching fast, but there’s still time for campers and volunteers to apply to join us in experiencing this life changing week! [Apply Today!]( --------------------------------------------------------------- MDA Shamrocks are now available! [MDA Shamrocks are now available! ]( Graphic Designer Matt Plummer, who lives with SMA, created this year’s Shamrock T-shirt design. He shares how he finds hope and empowerment in the progress that advocacy, increased awareness, and innovations in research bring to the community. [Read More]( Read Quest Magazine. Listen to the Podcast. Follow the Blog. [Subscribe]( Gather Your Team! MDA Muscle Walk Registration is NOW Open [Gather Your Team! MDA Muscle Walk Registration is NOW Open]( MDA families and the community have been participating in this program for decades. Newcomers like Team Milo joined MDA Muscle Walk last year, and said, "Sharing our son's diagnosis was challenging, but the encouragement from friends and the wider community was a beacon of hope. It reminded us that we're supported by a strong network, which is invaluable in navigating life's challenges." [Learn More & Register]( --------------------------------------------------------------- MDA Announces Seven Recipient Organizations of Advocacy Collaboration Grants [MDA Announces 7 Recipient Organizations of Advocacy Collaboration Grants]( The Akari Foundation, All Wheels Up, Child Neurology Foundation, Cure CMD, Cure Rare Disease, Cure VCP Disease, and Christopher & Dana Reeve Foundation are recipients of MDA Advocacy Collaboration Grants. [Learn More About the Grants]( --------------------------------------------------------------- MDA in the News - [The Emergence of Novel Biomarkers and Model Systems for ALS: Rita Sattler, MD, MSc]( - [Highlighting Genetic Discoveries and Therapeutic Developments in ALS: Matthew B. Harms, MD]( - [Advancements and Challenges in Genetic Treatments for Neuromuscular Diseases: John W. Day, MD, PhD]( - [Directed Evolution Holds Potential to Improve AAV Vector-Based Gene Therapy]( --------------------------------------------------------------- Upcoming MDA Events For all upcoming public events, please visit [mda.org/events](. MDA Virtual Learning: Navigating Adolescence Tuesday, March 12, 2024 | 3:00-5:00pm ET [Click Here for Details & to View]( MDA Advocacy Institute: The Administration's Major Air Travel Proposal March 14, 2024 | 7 p.m. ET [Register]( MDA Virtual Learning: Updates in Research and Clinical Care for CMT Tuesday, March 26, 2024 | 4 - 5 p.m. ET [Click Here for Details & to View]( Support Us Monthly For just $19 a month, you can be a champion for kids and adults with neuromuscular diseases. Donate today to support research and programs for people living with neuromuscular disease. [Donate Monthly]( --------------------------------------------------------------- [Facebook]( [Twitter]( [Instagram]( [LinkedIn]( [YouTube]( [MDA.org]( © 2024 Muscular Dystrophy Association, Inc.. All rights reserved. 1016 W Jackson Blvd #1073 Chicago, IL 60607 1-800-572-1717 [Unsubscribe]( | [State Fundraising Notices]( The Muscular Dystrophy Association (MDA) is a qualified 501(c)(3) tax-exempt organization. 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