MDA Launches Rare Disease Day Campaign to Raise Awareness and Support throughout February

Greetings, here’s your MDA Newsletter [Muscular Dystrophy Association]( [MDA Monthly Newsletter] Rare Disease Day Is February 29th – Help Us Spread the Word! [Rare Disease Day] Rare Disease Day is observed worldwide on the last day of February each year to raise awareness about rare diseases and the impact they have on the people living with them. All throughout February, MDA will be using our social channels to bring attention to the unique challenges that rare neuromuscular diseases like muscular dystrophy, ALS, spinal muscular atrophy, and many others present in the areas of diagnosis, care, and research. Through innovative programming and initiatives, MDA is meeting these challenges head on. You can help us by sharing these messages with your networks to raise awareness about rare diseases! --------------------------------------------------------------- Advocacy Victory: Newborn Screening for SMA in All 50 States [SMA Newborn Screening is in all 50 states]( Thanks to the efforts of advocates, every state now includes spinal muscular atrophy (SMA) in newborn screening programs, a critical step forward in early intervention and care. MDA is proud to have joined the effort that made this milestone possible. From healthcare professionals to MDA Advocates and families, thank you for your support. [Celebrate This Amazing Victory]( --------------------------------------------------------------- MDA Clinical & Scientific Conference: March 3-6 in Orlando, FL [MDA Clinical & Scientific Conference]( MDA invites you to join us in-person or virtually as we convene leading researchers, clinicians, and industry professionals to share the latest findings in neuromuscular disease and treatment options, as well as presenting practical considerations for treatment access. [Register Today]( Neuromuscular disease journeys don't need to be navigated alone — we're here to help! [VIsit the MDA Resource Center]( Experience the Magic of MDA Summer Camp [MDA Summer Camp]( MDA Summer Camp volunteer and camper applications are NOW open! Be a part of a place of complete inclusion, empowerment, exploration, and growth. Camp offers a fundamental experience that fosters independence, confidence, and well-being for campers and volunteers. [Join the Magic of Summer Camp]( --------------------------------------------------------------- It’s MDA Shamrocks Season! [Find a Retailer Near You]( Beginning this month, you'll find the iconic MDA Shamrocks participating retailers nationwide and online. Get your Shamrock today! [Find a Retailer Near You]( --------------------------------------------------------------- International Day of Women and Girls in Science Spotlight [International Day of Women and Girls in Science]( In recognition of International Day of Women and Girls in Science (IDWGS) on February 11th, we are honored and excited to highlight Dr. Dwi U. Kemaladewi’s career, accomplishments, and valuable contributions to neuromuscular disease research. [Read the Blog]( Read Quest Magazine. Listen to the Podcast. Follow the Blog. [Subscribe]( Create Connections: MDA Community Groups [Learn More & Register]( MDA is here to help so no one goes through their diagnosis alone. Connect with an MDA Community Group for a safe and supportive place to gather resources, interact with others, and exchange valuable information. [Learn More & Register]( --------------------------------------------------------------- MDA in the News - [MDA 2024 to Focus on Patient Experience in Gene Therapy, Nonviral Vectors, and More]( - [Gene Therapies Hold Promise for Neuromuscular and Other Rare Diseases]( - [MDA’s Gene Therapy Support Network Receives Patient Advocacy Award from Advanced Therapies]( - [Innovation Award Winners in Communications, Grassroots and Lobbying Honored at The Advocacy Conference]( --------------------------------------------------------------- Upcoming MDA Events For all upcoming public events, please visit [mda.org/events](. [MDA Virtual Learning: OPMD]( February 29, 2024 | 4 - 5 p.m. ET Support Us Monthly For just $19 a month, you can be a champion for kids and adults with neuromuscular diseases. Donate today to support research and programs for people living with neuromuscular disease. [Donate Monthly]( --------------------------------------------------------------- [Facebook]( [Twitter]( [Instagram]( [LinkedIn]( [YouTube]( [MDA.org]( © 2024 Muscular Dystrophy Association, Inc.. All rights reserved. 1016 W Jackson Blvd #1073 Chicago, IL 60607 1-800-572-1717 [Unsubscribe]( | [State Fundraising Notices]( The Muscular Dystrophy Association (MDA) is a qualified 501(c)(3) tax-exempt organization. [View Online]( | [Subscription Center]( | [Privacy Policy](