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From ALS Awareness to Voting Rights [Muscular Dystrophy Association]( [MDA Monthly Newsletter]( May is ALS Awareness Month [End ALS with MDA]( The Muscular Dystrophy Association (MDA) has launched a comprehensive lineup of activities and events for ALS Awareness Month this May, all focused on supporting people living with [amyotrophic lateral sclerosis]( (ALS), also known as Lou Gehrig's Disease. The month-long initiative begins with the release of a new [public service announcement titled ‘Answering the Call’ featuring Ken Sutcliffe]( retired Dallas Fire Fighter IAFF Local 58, and military veteran. Explore MDA’s ALS Awareness Month landing page to learn how you can participate throughout May and make a significant difference for people living with ALS and their families. [End ALS with MDA]( --------------------------------------------------------------- Discover MDA's new 'Access The Vote' Campaign! [Access the Vote]( Empower yourself with essential information and join the movement to harness your voting power! Get ready to make your voice count this November. Let's ensure everyone can access the vote this year! [Learn More]( --------------------------------------------------------------- Register for MDA’s ALS Virtual Learning Series [ALS Virtual Learning Series]( People living with ALS and their caregivers are invited to join MDA for a free virtual learning series filled with topics including advances in research, treatment options, speech, communication, exercise, and nutrition. Presentations will be given by expert clinicians and will include a live Q&A. [Register Today]( --------------------------------------------------------------- Join upcoming MDA ALS Community Groups [MDA ALS Community Groups]( If you or your family member are living with ALS, MDA Community Groups provide a safe place to gather resources, interact meaningfully and exchange valuable information with others in the ALS community. [Connect with Others]( --------------------------------------------------------------- MDA’s Wings Over Wall Street Gala to Honor Leading Voices [MDA's Wings Over Wall Street ]( ABC Eyewitness News Anchor, Bill Ritter, will host the 24th annual Wings Over Wall Street Gala on June 6, honoring leading voices living with ALS and allies in the fight to end the disease. [Meet the Honorees]( Neuromuscular disease journeys don't need to be navigated alone — we're here to help! [VIsit the MDA Resource Center]( Volunteer Spotlight: Meet Duane! [Read More About Duane]( Driven by his personal connection to MDA, Duane leads his fire station's Fill the Boot campaign, demonstrating his dedication and leadership. He not only organizes fundraising activities at his fire station but also raises awareness about MDA's mission at drag racing events. Duane's passion shines through, leaving a lasting impact on the greater community. [Read More About Duane]( --------------------------------------------------------------- Drink One for Dane on May 17! [Drink One for Dane]( For 18 years, Dutch Bros has partnered with MDA for their annual Drink One for Dane campaign, honoring the memory of Dane Boersma, who founded Dutch Bros with his brother, Travis. Drop by your local Dutch Bros on May 17 to help END ALS. [Drink One for Dane]( --------------------------------------------------------------- How MDA Prepares and Supports Summer Camp Volunteers [Prepare for MDA Summer Camp]( Based on the level of responsibility required by this role, it’s not surprising that someone might feel hesitant when considering becoming a summer camp volunteer for the first time. The MDA Summer Camp team works year-round to ensure that volunteers are trained, prepared, and supported during every aspect of summer camp. [Prepare for MDA Summer Camp]( --------------------------------------------------------------- Catch up on the Latest ALS Policy News [Latest ALS Policy News]( There’s a lot happening in Washington, D.C. that affects people living with ALS. Mark your calendar and join MDA on May 15 at 7 p.m. ET to hear about the latest ALS policy happenings and how you can make your voice heard. [Join Us]( Read Quest Magazine. Listen to the Podcast. Follow the Blog. [Subscribe]( New Quest Blog! Coping with a Difficult Diagnosis: Your Emotions Are Normal [Read the New Quest Blog]( “Everyone responds differently to their diagnosis, whatever is their unique new normal. There’s no typical reaction,” says Tara A. Jones, MS, LCGC. Strong emotions in the face of a diagnosis are common, but there are strategies and resources recommended by health professionals to help cope with those feelings. [Read the Blog]( --------------------------------------------------------------- ICYMI - [NeurologyLive’s NeuroVoices: Sharon Hesterlee, PhD, on Givinostat’s Approval for Duchenne Muscular Dystrophy, Future Prospects]( - [From Phillies hero to championing muscular dystrophy awareness, Rhys Hoskins’ journey is one of heart, home runs]( - [It’s year 70 for ‘Fill the Boot’ MDA fundraisers nationwide]( - [‘No plan B’: Texas runner heads to Boston for his final marathon]( - [Nearly $200K Raised by Price Chopper and Market 32 to Benefit Muscular Dystrophy Association]( - [$40,031 Raised by Local Convenience Store Chain for the Muscular Dystrophy Association]( - [$4 million raised for Muscular Dystrophy Association in Florida]( - [Amylyx Pharmaceuticals Announces Formal Intention to Remove RELYVRIO®/ALBRIOZA™ from the Market; Provides Updates on Access to Therapy, Pipeline, Corporate Restructuring, and Strategy]( --------------------------------------------------------------- Upcoming MDA Events For all upcoming public events, please visit [mda.org/events](. Muscle Walk of Missouri Sunday, May 5, 2024 | St. Louis, MO [Register Here]( Next Steps - Transition to Adulthood Tuesday, May 7-8, 2024 | 5 - 7 p.m. ET [Register Here]( Next Steps - Transition to Adulthood Tuesday, May 14-15, 2024 | 5 - 7 p.m. ET [Register Here]( Mike Bellotti's Toast to Strength Gala and Golf Tournament Thursday, May 16-17, 2024 | Eugene, OR [Register Here]( MDA Community Group Thursday, May 16, 2024 | 5 - 6 p.m. ET [Learn More]( Muscle Walk of Illinois Sunday, May 19, 2024 | Wheaton, IL [Register Here]( Support Us Monthly For just $19 a month, you can be a champion for kids and adults with neuromuscular diseases. Donate today to support research and programs for people living with neuromuscular disease. [Donate Monthly]( --------------------------------------------------------------- [Facebook]( [Twitter]( [Instagram]( [LinkedIn]( [YouTube]( [MDA.org]( © 2024 Muscular Dystrophy Association, Inc.. 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